A Couple is Creating Visual Memories for Their Children with a Rare Genetic Condition by Traveling Around the World

Angela the Content Muse

https://img.particlenews.com/image.php?url=2FB6wc_0lJv884O00
A photo of four siblingsPhoto bycottonbro studio/pexels

Edith Lemay and Sebastien Pelletier's daughter, Mia, was just three years old when they first noticed she was having vision problems. After several years and specialist consultations, Mia was diagnosed with retinitis pigmentosa, a rare genetic disorder that causes a gradual loss of vision. By 2019, their sons Colin and Laurent were also diagnosed with the same condition. Knowing that their children will be completely blind by mid-life, the couple decided to take their children on a year-long trip around the globe to build visual memories.

The family started to save up for the trip and were able to increase their funds when the company that Pelletier worked for was bought. They originally planned to leave in July 2020 but had to delay their plans due to the global pandemic. They eventually left Montreal in March 2022 with few plans in place, leaving without an itinerary, but with a bucket list of experiences for their children.

Their first destination was Namibia, where they saw elephants, zebras, and giraffes up close. They then moved on to Zambia, Tanzania, Turkey, Mongolia, and Indonesia. The couple's focus was on giving their children experiences they wouldn't normally see if they were sitting at home. They wanted their children to develop coping skills and resilience, constantly adapting as their vision deteriorates.

While traveling, the couple hoped to teach their children how fortunate they are despite the challenges that may come later in their lives. The parents also hoped that their children would appreciate the small things in life, such as having water in their home and being able to attend school every day. All four children adapted easily to life on the road and the parents were impressed with how curious and adaptable they were.

Although the diagnosis of their children is always in the back of their minds, Lemay and Pelletier focused on living in the moment and making the most of their time together as a family. They do not know when their children will go blind, but they are determined to take care of each of them and allow them to live the experience to the fullest. The ability to live in the moment is one of the key things the parents hope their children learn from this trip.

The couple's journey teaches us about making the most of every moment we have and appreciating what we have, even during challenging times. The story is a reminder that life is fleeting and that it's important to live in the moment and create meaningful experiences with the people we love.

I hope you enjoyed reading this post as much as I enjoyed writing it. As always, I appreciate your support and interest in the topics I cover.

If you found this post helpful, informative, or entertaining, please consider giving it a like and sharing it with your friends and family. Your support helps me reach a wider audience and inspires me to continue creating content that you enjoy.

Additionally, I value your opinions and thoughts on the subject. If you have any feedback or suggestions, please feel free to leave a comment below. I always enjoy hearing from my readers and engaging in meaningful conversations.

Disclaimer: This article is intended solely for educational and informational reasons.

Source: VLANFINITY

This is original content from NewsBreak’s Creator Program. Join today to publish and share your own content.

Comments / 0

Published by

Hi, I'm Angela, a Content Creator and marketer who is passionate about life and self-improvement.With an innate curiosity and a love for learning, I enjoy exploring new ideas and expressing my thoughts through the written word. My diverse interests have led me to write about various topics such as marketing, psychology, inspirational life stories, self-help, friendship, family, parenting, self-care and health. As a marketer, I deeply understand the significance of connecting with my audience and creating messages that resonate with them. This skill translates seamlessly into my content creation work, where my ultimate goal is to produce articles that not only inform but also inspire and engage my readers. Ever since I can remember, I've had a love for storytelling and its ability to connect people. Whether it's sharing an uplifting personal story or exploring complex ideas, I'm committed to creating content that helps others on their own personal journeys of growth and discovery. Through my writing, I strive to share what I learn and inspire others to reach their full potential.

San Francisco, CA
1K followers

More from Angela the Content Muse

John Nash: A Mathematician Who Struggled with Schizophrenia and Later Won the Nobel Prize in Economics

***This post was written using information from Wikipedia ***. John Nash was a well-known mathematician and economist, but he is primarily remembered for the contributions that he made to the field of game theory. However, the course of his existence was anything but pleasant sailing. He had schizophrenia for a number of years, but through perseverance and determination, he was able to conquer his disease and go on to achieve a great deal of success in his chosen profession.1928 was the year that Nash was born in Bluefield, West Virginia. He demonstrated early promise in the field of mathematics, which led to his enrollment at Princeton University, where he received his doctorate in 1950 after completing his studies. After finishing his education, Nash dove headfirst into the study of game theory, which would go on to become his most important contribution to the subject of economics. Nash's life was hampered by his difficulties with mental disease, despite the fact that he had early success in his career. He was in his early 30s when he first started to experience the symptoms of schizophrenia, and his condition deteriorated quickly after that. He suffered from intense hallucinations, delusions, and paranoia as his mental state deteriorated. At one moment in his life, he was under the impression that he was communicating with extraterrestrial entities. ash was determined to beat his sickness in defiance of the difficulties he encountered along the way. He sought medical attention and psychotherapy, and little by little, he started to get his mental abilities back. He was able to control his symptoms and make a miraculous recovery with the assistance of treatment modalities, namely medication, and counseling. In recognition of his contributions to game theory, the Nobel Prize in Economics was bestowed upon Nash in the year 1994. In spite of the substantial difficulties he encountered, he persisted and devoted himself to his work, and the honor is a testament to those qualities. The contributions that John Nash made to the study of game theory made a significant impact on the discipline of economics. His theories aided economists in their quest to comprehend the decision-making processes of both individuals and organizations in competitive and cooperative settings. His contributions helped to shape how economists think about strategic behavior, and his work has been applied to disciplines as disparate as politics, international relations, and military strategy. His contributions helped to shape how economists think about strategic behavior. Nash persisted in his work on game theory throughout his entire existence, in defiance of the difficulties caused by his mental illness. The Abel Prize, which is often referred to as the "Nobel Prize" of mathematics, was bestowed upon him in 2015 for his outstanding contributions to the field. In particular, the prize acknowledged Nash's work in the field of nonlinear partial differential equations, which was a significant contribution to the discipline of mathematics.

Read full story

Wilma Rudolph: An Olympic runner who overcame childhood polio and went on to win three gold medals

***This post was written using information from Wikipedia ***. 1940 marks the year of Wilma Rudolph's birth, which took place in St. Bethlehem, Tennessee. She was the 20th of a total of 22 children in her household, and she struggled financially and physically throughout her upbringing. She was only four years old when she was identified with polio, an illness that left her with a twisted left limb and required her to wear a brace on her foot for the rest of her life. Rudolph was determined to live a full and active existence despite the obstacles that he had to overcome. Rudolph started his education in Clarksville, Tennessee, at a school that catered to African American students when he was nine years old. It was there that she encountered a professor who observed her physical ability and inspired her to compete in track and field events. Rudolph had no trouble picking up the activity and started dominating the competition almost immediately, both locally and regionally. Rudolph participated in the Olympic Games that were held in Melbourne, Australia, in the year 1956. She did not come away with a medal, but she did acquire important experience and was motivated to do better in future competitions. During the subsequent four years, she put in more effort than ever before in her training, with the primary goal of improving her general speed and endurance as well as the strength of her weak limb. In 1960, Rudolph participated in the Olympic Games once again, this time in Rome, which is located in Italy. She had reached the age of 20 at this point and was taking part in three separate competitions: the 100-meter sprint, the 200-meter dash, and the 4x100-meter relay. In spite of intense competition from runners located all over the globe, Rudolph was able to win gold medals in all three competitions and established records in two of the races (the 100-meter and the 200-meter). Given Rudolph's challenging upbringing and the difficulties she overcame as a result of her polio, her victory is all the more impressive when taken into consideration. Rudolph, however, never viewed herself as a victim and never allowed her impairment to hold her back in any way. Instead of letting it bring her down, she channeled it into a source of inspiration that drove her to become the greatest athlete she possibly could be. She became an immediate superstar as a result of her success at the Olympics, and she utilized this platform to campaign for civil rights and equitable opportunities for all. She became an inspiration to young people all over the world by demonstrating that if one is willing to put in the effort, is determined, and is persistent, then any goal can be achieved. Rudolph is remembered as one of the greatest athletes of all time and as an encouragement to generations of athletes as well as non-athletes equally. Today, he is remembered as one of the greatest athletes of all time.

Read full story

Comments / 0